[PDF] Understanding Profound Intellectual And Multiple Disabilities In Adults eBook
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This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies. The author brings a wealth of many years' experience as a family carer, independent consultant and trainer to demonstrate the significant changes that a person-centred, specialised therapeutic and incremental approach can make to an individual's life. Advances in medical science mean more than ever, people with (PIMD) are growing into adulthood. What is this experience like for an adult who needs support in all aspects of their life? How do we include them in planning support when their intellectual disability means they cannot tell us first hand, what they want or need? Too often this group are overlooked or considered as an afterthought in policy and planning. Notions of independence, employment and mainstream inclusion are all problematic policy ideas for this group of people. Within one-size-fits-all service planning this focus means there is less capacity to meet their life-long specialist, complex and individualised needs. Understanding Profound and Intellectual and Multiple Disabilities in Adults is essential reading for anyone who is involved in the lives of adults with profound intellectual and multiple disabilities, whether as a researcher, student, carer or policy-maker.
This book pushes the boundaries in the way we approach people with profound intellectual and multiple disabilities, and in how we work with them in education and research. While it is grounded in diverse theoretical frameworks and disciplines, the book coheres around a commitment to seeing people with profound intellectual and multiple disabilities as equal citizens who belong in our classrooms, research projects and community lives. Each section covers policy contexts, key ideas and recent research. Featuring contributions from around the world, the book incorporates established and new voices, different disciplines and experiences. Additionally, it includes pieces from family members of people with profound intellectual and multiple disabilities. Divided into three parts, the book explores three main topics: Belonging in education Belonging in research Belonging in communities Belonging for People with Profound Intellectual and Multiple Disabilities is an invaluable resource for scholars, professionals and postgraduate research students with an interest in children or adults with profound intellectual and multiple disabilities.
Children and adults with profound and multiple learningdisabilities (PMLD) are among the most marginalised people insociety. They have some of the highest support needs and are mostreliant on services. This accessible text presents and promotescurrent best practice regarding interventions to meet the complexhealth needs of a person with profound & multiple learningdisabilities. Practical in focus, this text provides evidence-basedguidance on meeting the complex needs of a person with PMLD. The text presents a range of complex health needs that apractitioner may face, such as communication, nutrition, epilepsy,vision and mobility. Each practice-focused chapter provides cleardefinitions of the condition, with current evidence-basedbest-practice supporting the intervention. Written by a team of professionals who have wide experience andinterest in this subject area, this text will be invaluable for allthose working with, and caring for those with profound and multiplelearning disabilities.
Narrowed Lives is an illuminating portrait of what life is like in Finnish group homes where adults who have profound intellectual and multiple disabilities live their lives.
This handbook helps professionals working with adults with intellectual disabilities to establish the needs of individuals through systematic assessment and to monitor and evaluate the effectiveness of the service they provide. A comprehensive handbook for professionals working with adults with intellectual disabilities. Enables these professionals to establish the needs of individuals Helps them to monitor and evaluate the effectiveness of the service they provide. Expert contributions include conceptual chapters and descriptions of selected assessment instruments. Covers the full spectrum of need, including adults with mental health difficulties, behavioural problems, forensic needs and assessment of people with profound intellectual and multiple disabilities, and those suspected of developing dementia.
This handbook helps professionals working with adults withintellectual disabilities to establish the needs of individualsthrough systematic assessment and to monitor and evaluate theeffectiveness of the service they provide. A comprehensive handbook for professionals working with adultswith intellectual disabilities. Enables these professionals to establish the needs ofindividuals Helps them to monitor and evaluate the effectiveness of theservice they provide. Expert contributions include conceptual chapters anddescriptions of selected assessment instruments. Covers the full spectrum of need, including adults with mentalhealth difficulties, behavioural problems, forensic needs andassessment of people with profound intellectual and multipledisabilities, and those suspected of developing dementia.
This book offers the practical, ready-to-use MuSense program. Originally designed for music therapists working with individuals with profound multiple disabilities, the MuSense program provides comprehensive guidance to music therapists on how to effectively work with individuals whose needs can be extremely difficult to meet. Containing a robust, structured, evidence-based protocol of music therapy, and supported by case studies throughout, this book is also an essential resource in treatment planning for other diverse populations needing to develop enhanced body and sensory awareness.
This book challenges the very idea of "profound and multiple learning disabilities" (PMLD) itself, and what constitutes appropriate educational provision for children described as having PMLD. It considers the role of ambiguity in articulating the life-worlds of children with PMLD.
The quality of life of people with profound intellectual and multiple disabilities (PIMD) is affected by many factors, including health status, involvement in activities, and social networks; but most critical is the quality of interaction experienced by the person on a daily basis. For many people with PIMD, most of whom reside in residential services where they receive 24-hour support, the primary people for interaction are paid disability support workers (DSWs). Quality interaction is difficult to define and such definition is made more complicated when one of the communication partners does not use or seem to understand speech. Research on communication and people with intellectual disability has focused largely on people with existing symbolic communication skills (i.e., people who use words, pictures, or signs to communicate) or developing the skills of pre-symbolic communication so they can become symbolic (e.g., developing the use of objects as symbols or other consistent ways for expressing wants and needs). In interventions that aim to move a person to use symbolic communication, the focus has been on human agency. Agency refers to the quality of an individual expressing what s/he wants and a communication partner recognising that expression. Agency has been the underlying construct of interventions focused on enhancing choice and preference expression, and in research in which the estimated comprehension of the person with a disability is measured against the complexity of communication used by interaction partners. The findings of such research have indicated a tendency for DSWs' communication to be at a higher level than the assessed comprehension level of their clients.Far less attention has been given by communication specialists in the intellectual disability field to concepts related to social closeness or interactive relationships, in which the goal is not the transfer of information, but just being together with another person. Some theorists have labelled such feelings of togetherness as intersubjectivity. Although there have been differences in definitions across theorists, intersubjectivity broadly refers to the sharing of minds of two people. It has been used largely in infant development to describe the nature of interaction between parents and infants, and the way that expressions of emotion are shared through subtle intimate interactions. Stern (1985) described three particular types of intersubjectivity: interattentionality, interintentionality, and interaffectivity or affect attunement. Affect attunement refers to the use of cross model means to recast affect expressions to share feelings. The use of affect attunement by a mother with her infant has been suggested to be a key feature of the quality of an interactive relationship.The examination of affect attunement in interactions between DSWs and adults with PIMD offers the potential to open new avenues for describing quality of interactions. The aim of the present study was to see if affect attunement is used and, if so, describe the nature of affect attunement used by DSWs in their interactions with adults with PIMD in natural interactions in residential settings. In particular, the focus was on describing the frequency, modal and amodal qualities of the behaviours of both participants, and examining relationships between DSWs' gender, parenting experience, and length of time working with the person and their affect attunement. Interactions from 21 pairs of DSWs and adults with PIMD were video-recorded and 10 minutes of each dyad was analysed using the Affect Attunement and Behavioural Coding manual. Sixty-four incidents of affect attunement were found across 16 dyads. DSWs attuned to behaviours of the person with PIMD characterised by motor effort, attention, and some emotional expression. DSWs often used similar modes of expression to attune to the eliciting behaviour, but also used speech to demonstrate their attunement. Five DSWs did not use affect attunement. Exploring interaction from an intersubjective perspective has clear merit. Affect attunement is a pre-existing strength used by DSWs that may be enhanced. It may act as a much better indicator of quality of interactions than indicators focusing on the agency expressions of the person with a disability. Further research is needed to establish the relationship between the use of affect attunement and the quality of interactions. Being aware of the presence of affect attunement may have implications for therapists, both for their own engagement with people with PIMD and implications for how to encourage existing skills and support DSWs to further enhance interaction.