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The Emotional Journey of the Alzheimer's Family

Author : Robert B. Santulli, MD
Publisher : Dartmouth College Press
Page : 231 pages
File Size : 38,48 MB
Release : 2015-03-22
Category : Health & Fitness
ISBN : 1611687454

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Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The Emotional Journey of the Alzheimer's Family

Author : Robert B. Santulli, MD
Publisher : Dartmouth College Press
Page : 231 pages
File Size : 41,98 MB
Release : 2015-04-17
Category : Health & Fitness
ISBN : 1611687446

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Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

A Families Journey with Alzheimer’s Disease

Author : Bob Sh'mal Ellenberg
Publisher : Balboa Press
Page : 83 pages
File Size : 23,59 MB
Release : 2019-03-08
Category : Biography & Autobiography
ISBN : 1982222018

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The book is about the author and his father who had Alzheimer’s disease. Because of the author’s experience with people with AD, he knew he could care of his father. There was family conflict since the author’s mother did not want her husband to live to far from her. The son showed complete compassion for both this parents, finally agreeing on an assisted living facility. The author discusses the many trips he took to visit his father and his mother who was still living in their condo. The author’s mother was a very conflicted woman who was adamant about all she believed but sadly was, obviously at times, confused. There were many quarrels between the mother and son. After twelve months in assisted living, the author brought his father to his home. The son wanted to do his best once his father was in his home, but having three young children living with him and working full time in a hospital as a social worker, none of it was easy. The author concludes this trying, emotional story with a trip to Denver, Colorado. Before the author leaves, two women friends did a shamanic ritual with him, telling him he has to visit Crestone, Colorado. This visit becomes an unexpected mystical retreat for the author that also proved to have a bonded connection with his father.

H.O.P.E. for the Alzheimer's Journey

Author : Carol B. Amos
Publisher : Morgan James Publishing
Page : 149 pages
File Size : 44,92 MB
Release : 2018-06-03
Category : Health & Fitness
ISBN : 1683509048

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“A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.

It's Not That Simple: Helping Families Navigate the Alzheimer's Journey

Author : Pam Ostrowski
Publisher : Alzheimer's Family Consulting
Page : 322 pages
File Size : 30,42 MB
Release : 2021-10-12
Category : Family & Relationships
ISBN : 9781735709611

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This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

Alzheimer's Disease

Author : Wayne A. Caron
Publisher :
Page : 244 pages
File Size : 16,15 MB
Release : 2001-05
Category : Health & Fitness
ISBN : 9780962961427

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The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's

Author : Shelly Calcagno
Publisher : Ambassador International
Page : 91 pages
File Size : 15,73 MB
Release : 2022-11-15
Category : Religion
ISBN : 1649603371

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Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.

Healing Your Grieving Heart When Someone You Care About Has Alzheimer's

Author : Alan D. Wolfelt
Publisher : Companion Press
Page : 129 pages
File Size : 37,70 MB
Release : 2011-11-01
Category : Health & Fitness
ISBN : 1617221813

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Navigating the challenging journey that families and friends of Alzheimer’s patients must endure, this heartfelt guide reveals how their struggle is as complex and drawn out as the illness itself. Confronting their natural but difficult process of grieving and mourning, the study covers the inevitable feelings of shock, sadness, anger, guilt, and relief, illustrating the initial reactions people commonly feel from the moment of the dementia’s onset. Healthy and productive ways to acknowledge and express these feelings are suggested along with 100 tips and activities that fulfill the emotional, spiritual, cognitive, physical, and social needs of those who care about someone afflicted with this debilitating disease. Special consideration is also shown for caregivers, whose grief is often complicated by the demanding physical attention that patients require.

Living with Alzheimer's: A Journey Observed

Author : Leigh Smyth, M.D.
Publisher : Lulu.com
Page : 128 pages
File Size : 27,52 MB
Release : 2017-09-29
Category : Biography & Autobiography
ISBN : 148346766X

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"Alzheimer's disease rewrites the terms of a marriage in this debut memoir... a touching personal account..." - Kirkus Reviews "... a concise and moving treatise that supports and informs caregivers of Alzheimer's patients. This book is required reading for family caretakers, clinicians, and others who simply wonder how to approach such afflictions." - D. Robert Aiello, Ph.D Writing from the vantage point of a spouse and mental health professional who has witnessed and cared for a loved one with Alzheimer's over the course of ten years, the author- a clinical psychiatrist- reveals the personal side of signs and symptoms of the disease beyond memory loss that make up the full developmental syndrome of Alzheimer's, including: distortion of memory erratic likes and dislikes oppositionality hoarding and miming behaviors irritability and mood instability personality changes loss of cognitive resilience judgment issues paranoia common psychological defenses against these progressive losses

Creating Moments of Joy Along the Alzheimer's Journey

Author : Jolene Brackey
Publisher : Purdue University Press
Page : 298 pages
File Size : 14,44 MB
Release : 2016-11-15
Category : Family & Relationships
ISBN : 1612494838

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The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.