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Dementia: a specter that haunts many, either as a fear for the future or as lived reality with a loved one. It has been called the “theological disease” because it affects so much of how we define our humanity: language, long-term memory, and ability to plan the future. The church has a role in bringing hope and shepherding the spiritual journeys of people with dementia and their families. Beginning with current theological models of personhood, concepts about the self and spirituality are explored through the latest research in medicine and neuroscience as well as from work on spirituality and aging. The final chapter focuses on narratives of successful programs in churches and retirement communities designed to minister to people with dementia alongside their families and caregivers.
Dementia: a specter that haunts many, either as a fear for the future or as lived reality with a loved one. It has been called the “theological disease” because it affects so much of how we define our humanity: language, long-term memory, and ability to plan the future. The church has a role in bringing hope and shepherding the spiritual journeys of people with dementia and their families. Beginning with current theological models of personhood, concepts about the self and spirituality are explored through the latest research in medicine and neuroscience as well as from work on spirituality and aging. The final chapter focuses on narratives of successful programs in churches and retirement communities designed to minister to people with dementia alongside their families and caregivers.
Four factors are rapidly converging into a “silver tsunami” that will soon challenge every aspect of American society: 1) the increasing number of people living with dementias; 2) the mounting number of people providing dementia care, whether they want to or not; 3) the spiraling healthcare costs of dementia care; and 4) the lack of geriatricians to provide medical care and oversight. The way dementia care is currently provided is simply not sustainable. Congregations and other community groups must on the one hand find ways to support those providing dementia care, and on the other hand become involved in long-term efforts to make such care reliable, reasonable, and affordable so that those with dementia will not be forsaken.
Encouragement and guidance for ministering to those with dementia Millions of Christians suffer from dementia diseases such as Alzheimer's, making ministry to them difficult as they lose memories and the ability to communicate. Drawing on her years of experience as a long-term care chaplain, Kathy Berry provides practical information and tools to equip ministers and lay leaders to meet the spiritual and pastoral needs of those living with dementia. Chapters cover vital topics, including these: · Identifying those who may be showing signs of dementia and learning how to support them as they seek a diagnosis · Communicating with dementia patients as their language skills decline · Meeting the emotional, spiritual, and physical needs of people with dementia--and the needs of their caregivers An invaluable resource to meet a growing need for congregations around the country, When Words Fail equips readers to answer Christ's call to minister to "the least of these."
Memory loss should not be spiritual loss. “What do I do to help?” Alzheimer’s is the sixth leading cause of death in the United States, almost everyone knows someone with some form of dementia, yet few know how to answer that question, and very little material exists on providing spiritual care to adults with dementia-related diseases. Even seminaries rarely provide training or clinical pastoral education in this field. This book is an answer. It provides a hands-on manual that will give clergy, spiritual care providers, and family members an understanding of the ongoing spiritual needs of individuals with dementia, as well as practical tools such as how to create a religious service in a memory care unit and how one might plan a nursing home visit. Accessibly written, with real life applications and sample services for a variety of settings. More than just useful, the book inspires with shared stories that are tender, sad, funny—and sometimes all three at once, encouraging readers to develop spiritual care ministries for people with memory loss in congregations, homes, nursing facilities, or other communities—a ministry that will only gain in importance in the coming decade, as Baby Boomers age and the number of people with Alzheimer’s and dementia skyrockets.
Dementia diseases represent a crisis of faith for many family members and congregations. Magnifying this crisis is the way people with dementia tend to be objectified by both medical and religious communities. They are recipients of treatment and projects for mission. Ministry is done to and for them rather than with them. While acknowledging the devastation of dementia diseases, Ken Carder draws on his own experience as a caregiver, hospice chaplain, and pastoral practitioner to portray the gifts as well as the challenges accompanying dementia diseases. He confronts the deep personal and theological questions created by loving people with dementia diseases, demonstrating how living with dementia can be a means of growing in faith, wholeness, and ministry for the entire community of faith. He also reveals that authentic faith transcends intellectual beliefs, verbal affirmations, and prescribed practices. Carder asserts that the Judeo-Christian tradition offers a broader lens, defining personhood in relationship to God’s story and humanity’s participation in God’s mighty acts of creation and new creation; thereby contributing to hope, community, and self-worth. Pastors and congregations will be better equipped to minister with people affected by dementia, receiving their gifts and responding to their unique needs. They will learn how people with dementia contribute to the community and the church’s life and mission, discovering practical ways those contributions can be identified, nurtured, and incorporated into the church’s life and ministry.
Pain studies, both in exact sciences and in the humanities, are a fast-shifting field. This volume condenses a spectrum of recent views of pain through the lens of humanistic studies. Methodologically, the volume is an interdisciplinary study of the questions pertaining to the accessibility of pain (physical or emotional) to understanding and of the possible influence of suffering on the enhancement of knowledge in private experience or public sphere. Undeterred by the widespread belief that pain cannot be expressed in language and that it is intransmissible to others, the authors of the essays in the collection show that the replicability of records and narratives of human experience provides a basis for the kind of empathetic attention, dialogue, and contact that can help us to register the pain of another and understand its conditions and contexts. Needless to say, the improvement of this understanding may also help map the ways for the ethics of response to (and help for) pain. Whereas the authors of the volume tend to share the view of pain as a totally negative phenomenon (the position taken in Elaine Scarry’s The Body in Pain), they hold this view applicable mainly to the attitudes to the pain of others and the imperative of minimise the causes of another’s suffering. They also consider this view to be culturally and temporally circumscribed. The volume suggests that one’s own personal experience of suffering, along with the awareness of the seriality of such experience among fellow sufferers, can be conducive to emotional and intellectual growth. The reading of literature dealing with pain can lead to similar results through vicariously experienced suffering, whose emotional corollaries and intellectual consequences may be conveyed through artistic rather than discursive means. The distinctive features of the volume are that it processes these issues in a historicising way, deploying the history of the ideas of pain from the Middle Ages to the present day, and that it makes use of the methodology of different disciplines to do so, arriving to similar conclusions through, as it were, different paths. The disciplines include analytic philosophy, historiography, history of science, oral history, literary studies, and political science.
Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.
Historian Jesse F. Ballenger traces the emergence of senility as a cultural category from the late nineteenth century to the 1980s, a period in which Alzheimer's disease became increasingly associated with the terrifying prospect of losing one's self. Changes in American society and culture have complicated the notion of selfhood, Ballenger finds. No longer an ascribed status, selfhood must be carefully and willfully constructed. Thus, losing one's ability to sustain a coherent self-narrative is considered one of life's most dreadful losses. As Ballenger writes "senility haunts the landscape of the self-made man." Stereotypes of senility and Alzheimer's disease are related to anxiety about the coherence, stability, and agency of the self—stereotypes that are transforming perceptions of old age in modern America. Drawing on scientific, clinical, policy, and popular discourses on aging and dementia, Ballenger explores early twentieth-century concepts of aging and the emergence of gerontology to understand and distinguish normal aging from disease. In addition, he examines American psychiatry's approaches to the treatment of senility and scientific attempts to understand the brain pathology of dementia. Ballenger's work contributes to our understanding of the emergence and significance of dementia as a major health issue.
In recent years, the literature on the topic of ethnic and racial issues in Alzheimer’s disease and other dementias has increased dramatically. At the same time, the need for cultural competence in all of geriatric care, including dementia care, is increasingly being acknowledged. Dementia is a large societal problem affecting all communities, regardless of race or ethnicity, and understanding dementia for specific groups is tremendously important for both clinical knowledge and for health planning as a nation. This third edition of Ethnicity and the Dementias offers invaluable background information in this area, while also examining how those suffering from dementia and their family members respond or adapt to the challenges that follow. Thoroughly updated and revised throughout, the book features contributions from leading clinicians and researchers in the field, with particular attention given to genetic and cultural factors related to dementia, effective prevention and treatment strategies, and issues in caregiving and family support. Chapters offer specific recommendations for dementia care in eleven ethnic/racial groups, as well as suggestions for working effectively with LGBTQ families. Providing a truly comprehensive resource on ethnicity and dementia, and including reflections on emerging trends and the future of caregiving, this new edition is ideal reading for clinicians, educators, researchers, policy makers, and families, in search of the most current ethnogeriatric findings.