[PDF] My Journey With Multiple Sclerosis Revisited eBook
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Over 30 years with Multiple Sclerosis is a journey I never expected to take. Nor was it a journey that I would have wanted to take if I had had a choice. Since I did not have the choice to take this journey, I have tried to face each new point in this journey with courage and faith in myself, my family, and my friends. I have tried to not allow despair or depression dominate my thinking. I am sure that is why I am still married to the same man for close to 50 years. I am grateful to him every day of my life and hope I never allow myself to take his love for granted.
The author of the best-selling book “Are You Ethical?” writes an inspirational and informative book about his life long battle with Multiple Sclerosis. His story is a must read for anybody with the disease, and anybody undergoing struggles with any physical or emotional obstacle in their life. His physical and mental approach to MS, is a tool we can all emulate. A quick and illuminating read.
When people hear a diagnosis of multiple sclerosis, their reactions range from denial to confusion to all-out panic. Mary Monaghan Sypawka was diagnosed with MS in 1993, when no medications were available. Due to the lack of information about fighting the disease, Sypawka went on a personal journey to find out as much as she could. In In My Shoes, she graciously and realistically shares what she has learned. There are many elements of MS that people "don't talk about." Sypawka tackles those aspects with grace and humor. She openly discusses her medicine injections, difficulties with public places, and her relationship with her husband. She lays it all out in the hopes of helping others get and stay smart about MS. Packed with information about medications, resources, doctor visits, and adapting home and work environments to fit MS needs, this simple, uplifting guide does away with clinical, complex jargon and explains MS in a way everyone can understand. Whether you have been diagnosed or you know someone who has MS, In My Shoes is a must-have aid to understanding, treating, and coping with the disease.
Danica King wrote a memoir focusing on her journey with Multiple Sclerosis. She discusses the role that snapshots began to play in her Multiple Sclerosis journey. Danica's goal was to share several anecdotes about how she has managed her MS, so that other MSers don't have to learn so many things the hard way. Fully realizing everyone will have a different experience, Danica has addressed the masses with both the good and the bad things she has encountered. She has covered subjects that other MSers may not feel comfortable discussing, while not taking herself too seriously. Danica has written this narrative like she is speaking directly to her readers. Danica wrote the book that she wishes had been presented to her as a resource earlier. Danica will detail how she has flourished since her diagnosis.
This book is a first-hand account of my journey with Multiple Sclerosis (MS). As I went through the stages of diagnosis to disease management, it became apparent that while there were numerous books written on the subject of MS, most focused on the medical or clinical aspects of the disease. While these sources were certainly empirically informative, they were coldly lacking in the emotional preparation and guidance that I needed. There is a profoundly personal side to any life changing diagnosis, and this is where the true struggle resided for me. I couldn't turn to anything of a nonclinical substance that would help guide me through the emotional and mental turmoil I was experiencing. There was so much I wanted to know not only from my doctors, but also from other people with MS. As I started navigating my way through things in a bit of a clumsy fashion, I was inspired to write down my thoughts and insight as that new person with MS and what they would likely want to know not only about the disease but also about themselves. This book covers the time I reflected over the year leading up to my diagnosis and the first year after receiving my diagnosis with MS. The book is divided into three distinct parts. Part One looks at a wide variety of personal topics and experiences and the impact Multiple Sclerosis has played on each. There are times of frustration, denial and sorrow. There are topics of extreme support and heroes that have stepped up in my journey. There are character traits that can be of benefit and others that can be detrimental. The intent has been to capture these aspects, feelings and thought provoking situations and how MS has touched it all. In a way, this section is a reflection of my own personal struggle through the initial blow of learning about my MS and coming to accept it as a part of who I now am. Part Two focuses on moving from a position of understanding to truly accepting what MS means in my life. Acceptance doesn't just mean sitting still, but gaining a clear mind on how you are going to choose to live with MS. Acceptance is not just formed from the perspective of being that someone with MS, but it is formed by the people around me as well. Friends, coworkers, and family all will be affected by this disease in some way, and it is vitally important that we prepare to help everyone touched by MS come to a pure sense of acceptance. Part Three is all about capitalizing on the sense of acceptance and beginning to focus on those specific efforts and the needed energy to beat it. Knowing there is no cure today does not mean that I just give up. There are so many things that can be done to maintain a "normal" life, but it takes work and a proactive frame of mind. Like many struggles we can all face in our lives, MS is really no different. There is almost always a way to make a situation like this better, but it does take time, effort, and determination. From a personal perspective, this book intends to do two things...to help others better understand the everyday experiences of a person with MS, to know what the disease takes away, and also what the disease gives. The second, to help me as a person with MS move beyond merely accepting this disease and knowing that regardless of what limitations I may end up with, that I can contribute to a better result, a brighter future for someone, be a better father and husband to my family, and look back and feel good about my life...every minute of it. Life can be so much more if I can find the way to live with MS in my life rather than find a way to fit my life into MS. My wish to the second point is that it will do the same for you.
Over 30 years with Multiple Sclerosis has been a journey I never intended to take. I have gone through denial to rejection to acceptance, finally. But the biggest obstacle I had to overcome was my own rejection of the reality of MS. I had to realize that MS did not define me or who I am. It has proven to be a long and soul-searching journey. I hope telling my very personal story may help someone else accept MS in themselves or a loved one. I am very fortunate to have a caregiver that is my husband and my best friend. i can only thank God he is in my life.
Joys commitment to demystifying the symptoms and challenges of multiple sclerosis has resulted in the writing of a book that offers hope and inspiration to others. As Joy persevered, she learned a multitude of lessons that enabled her to maximize her level of functioning and to find meaning in even the most difficult challenges. She invites readers to take a walk with her through her story in order to connect to their own tenacity and resilience. By presenting the information in a reader friendly style, anyone facing adversity will find helpful strategies and the courage to Never Give Up in their own difficulties. Margaret Evans RN, BScN, CPCC Registered nurse, life coach, author
My MSAdventures: Multiple Sclerosis: Its Not Just a DiseaseIts an Adventure portrays the journey of a persistent and optimistic woman who has endured decades of complicated navigation through the sometimes turbulent currents of life with the diagnosis of multiple sclerosis. Writing in a tone that captures the identical light-hearted and hopeful approach that has kept her afloat for decades, Becky Kennedy shares how she lives with a condition that could easily capsize her life. Proceeding topically rather than chronologically, the authors narrative in My MSAdventures tells how the adventures began, reviews rehab and other fun vacation spots, and points out how adventures await one everywhere. As an added feature, an appendix provides a collection of useful Web sites. If you are one of the many who live with the diagnosis of MS and wonder howdespite your conditionyou not only will endure, but also thrive, My MSAdventures promises to help you to see beyond the currently tough times to the prospects ahead of you. If, on the other hand, you are someone who cares for another who lives with MS, then My MSAdventures has an uplifting message of hope for you too. If you have been diagnosed with multiple sclerosis (MS), this book is a must. Becky shares her own personal trials and tribulations with the disease. I recommend this book not only to every patient of mine with MS, but also to their family and friends.