[PDF] Living With Motor Neurone Disease eBook

Author : Marie Murray Marie
Publisher : Atrium
Page : pages
File Size : 10,63 MB
Release : 2021-10
Category :
ISBN : 9781782054832

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Living with Motor Neurone Disease: A complete guide is designed to guide the reader through this complex progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means that messages gradually stop reaching the muscles, which leads to weakness and wasting. Motor Neurone Disease can affect the everyday things that we take for granted. A diagnosis of MND can be frightening and overwhelming. Good quality information and support from people who understand MND is vital at this time. Living with Motor Neurone Disease is written by many of the most distinguished Irish experts on MND, bringing safe, reliable, practical information and reassurance to everyone affected by Motor Neurone Disease. Having accurate information and timely access to the best available services including doctors, neurologists, MND outreach nurses and local community healthcare professionals makes all the difference when it comes to a person's journey with MND. This is a step-by-step guide for everyone which explains what MND is; how it is diagnosed; how it affects the individual and the family; the psychological dimensions of the condition; the caregiver experience; living with the condition and facing the future; how to talk to children and adolescents; how to tell family and friends; how to adapt working conditions and home life; and it describes all the supports; medical, psychological technological and practical to cope with the daily impact of living with MND. In summary, it is an invaluable resource to inform, educate prepare and signpost people toward practical everyday supports and clinical expertise. Living with Motor Neurone Disease: A complete guide is a must-read for professionals; for doctors, nurses, educationalists, for psychologists, systemic family therapists and psychotherapists, those working in human resources and everyone who needs to understand the condition when they encounter it.

Author : Peter Anderson
Publisher : Brolga Publishing
Page : 183 pages
File Size : 23,1 MB
Release : 2018-11-01
Category : Biography & Autobiography
ISBN : 0909608121

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In 2001 Peter Anderson was 37 and had the perfect life: very much in love and recently married with an infant daughter he adored; an intelligent and sensitive man working a job he loved as a popular secondary school teacher and a talented sportsman training for a marathon... The bubble was about to burst. Peter was diagnosed with Motor Neurone Disease (MND), a physically crippling disease that destroys nerve cells controlling muscular movement. He was told that over time his body would cease to function - yet his mind, his memory and his feelings would be untouched by the disease. His life expectancy was two years. Incredibly, eleven years on, despite Peter's body wasting away, his mind remains as it has always been: strong and vibrant, intelligent, enquiring, touched with gentle humour. Silent Body - Vibrant Mind has been written with often unimaginable physical difficulty. An unforgettable story about what matters in life.

Author : Kevin Jordan
Publisher : Createspace Independent Publishing Platform
Page : 104 pages
File Size : 14,7 MB
Release : 2016-05-20
Category :
ISBN : 9781533183330

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How much more time do I have left? I fell for the second time yesterday. Am I deteriorating more quickly than I thought? I will have to be fed. I will have to be helped on the toilet. These thoughts churn in my mind. For the first time I have a genuine fear of what is to come. I've held it together until this point, but processing all the information about the future is too much. I can't stop the tears. How much longer will I still be able to walk? To speak? To act normally? It has been nearly eight years since I was diagnosed with Motor Neurone Disease (MND). When I started writing this book four years ago, I was full of anger, anxiety, fear and frustration. I have changed. It has been a journey of self-discovery, forgiveness of myself, as well as love and acceptance of others. This is my story about living with MND. But more than that, this is a book about hope, love, spiritual fulfilment, and the lessons I've learned on this journey.

Author : Marie Murray
Publisher :
Page : pages
File Size : 42,57 MB
Release : 2021
Category :
ISBN : 9781782054863

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"Living with Motor Neurone Disease: A complete guide is designed to guide the reader through this complex progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means that messages gradually stop reaching the muscles, which leads to weakness and wasting. Motor Neurone Disease can affect the everyday things that we take for granted. A diagnosis of MND can be frightening and overwhelming. Good quality information and support from people who understand MND is vital at this time. Living with Motor Neurone Disease is written by many of the most distinguished Irish experts on MND, bringing safe, reliable, practical information and reassurance to everyone affected by Motor Neurone Disease. Having accurate information and timely access to the best available services including doctors, neurologists, MND outreach nurses and local community healthcare professionals makes all the difference when it comes to a person's journey with MND. This is a step-by-step guide for everyone which explains explains what MND is; how it is diagnosed; how it affects the individual and the family; the psychological dimensions of the condition; the caregiver experience; living with the condition and facing the future; how to talk to children and adolescents; how to tell family and friends; how to adapt working conditions and home life; and it describes all the supports; medical, psychological technological and practical to cope with the daily impact of living with MND. In summary, it is an invaluable resource to inform, educate prepare and signpost people toward practical everyday supports and clinical expertise. Living with Motor Neurone Disease: A Complete Guide is a must-read for professionals; for doctors, nurses, educationalists, for psychologists, systemic family therapists and psychotherapists, those working in human resources and everyone who needs to understand the condition when they encounter it"--

Author : P.N. Leigh
Publisher : Springer Science & Business Media
Page : 477 pages
File Size : 35,55 MB
Release : 2012-12-06
Category : Medical
ISBN : 1447118715

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Here is the first book to provide a comprehensive overview of the clinical, pathological, and research aspects of motor neuron disease (MND). The text contains all essential features of the anatomy, physiology, pharmacology and toxicology of the motor system, a full description of MND and its variants, as well as historical developments and a review of the current concepts and controversies. This book comes at a time of increasing interest in neurodegenerative disorders and MND in particular. It will prove a key reference book with an integrated overview of the field, and will be indispensable to practicing neurologists, researchers, and all those with an interest in MND.

Author : Rob Burrow
Publisher : Pan Macmillan
Page : 329 pages
File Size : 32,42 MB
Release : 2021-08-19
Category : Biography & Autobiography
ISBN : 1529073278

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Winner of the Sports Book Awards 2022 The huge Sunday Times number one bestselling inspirational memoir from rugby league legend Rob Burrow on his extraordinary career, his incredible friendship with fellow Rhino Kevin Sinfield, and his battle with motor neurone disease. ‘A pocket rocket of a player and a giant of a character . . . He [was] one in a million and his story is truly inspirational’ – Clare Balding ‘I’m not giving in until my last breath’ – Rob Burrow Rob Burrow was one of the greatest rugby league players of all time. And the most inspirational. As a boy, Rob was told he was too small to play the sport. Even when he made his debut for Leeds Rhinos, people wrote him off as a novelty. But Rob never stopped proving people wrong. During his time at Leeds, for whom he played almost 500 games, he won eight Super League Grand Finals, two Challenge Cups and three World Club Challenges. He also played for his country in two World Cups. In December 2019, Rob was diagnosed with motor neurone disease, a rare degenerative condition, and given a couple of years to live. He was only thirty-seven, not long retired and had three young children. When he went public with the devastating news, the outpouring of affection and support was extraordinary. When it became clear that Rob was going to fight it all the way, sympathy turned to awe. This is the story of a tiny kid who adored rugby league but never should have made it – and ended up in the Leeds hall of fame. It’s the story of a man who resolved to turn a terrible predicament into something positive – when he could have thrown the towel in. It’s about the power of love, between Rob and his childhood sweetheart Lindsey, and of the life-changing bond of friendship between Rob, Kevin Sinfield, and their Rhino teammates. Far more than a sports memoir, Too Many Reasons to Live is a remarkable, awe-inspiring story of boundless courage and infinite kindness.