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This is the tale of a devastating pandemic, of lives cut painfully short; it's also a love letter. Derek, a distinguished designer and J, his husband, a pioneering entrepreneur and creator of both The Embassy Club, London’s answer to Studio 54, and iconic Heaven, Europe’s largest gay discotheque, met and fell in love more than 40 years ago. Their lives were high-octane, full of adventure, fun and fearless creativity. Suddenly their friends began to get sick and die – AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their personal crisis with courage, humour and an indomitable resolve to survive. J’s battle lasted six long years. Turning to spiritual reflection, yoga, nature – and always to love – Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death. Out of this transformation also came Aids Ark, the charity they founded, which helped to save, amongst the world’s most marginalised people, more than 1,000 HIV Positive lives. This is a story of joy and triumph; about facing universal challenges; about the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many in society refused even to acknowledge. His is a powerful story chronicling this extraordinary time.
In the era of the Internet and Oprah, in which formerly taboo information is readily available or freely confided, secrecy and privacy have in many ways given way to an onslaught of confession. Yet for those who are HIV positive, decisions about disclosure of their diagnosis force them to confront intimate, fundamental, and rarely discussed questions about truth, lies, sex, and trust. Drawing from interviews with over seventy gay men and women, intravenous drug users, sex workers, bisexual men, and heterosexual men and women, the authors provide a detailed portrait of moral, social, and psychological decision making. The interviews convey the complex emotions of love, lust, longing, hope, despair, and fear that shape individual dilemmas about whether to disclose to, deceive, or trust others concerning this disease. Some of those interviewed revealed their diagnosis widely; others told no one. Some struggled and ultimately told their partners; others spoke in codes or half-truths. One woman discovered her husband's diagnosis in a diary; when confronted, he denied it. Each year in the United States, 40,000 new cases of HIV arise, yet approximately one-third of the 900,000 Americans who are infected do not know it. As treatments have improved, unsafe sexual behavior has increased and efforts at prevention have stalled. Many of those infected continue to fear and experience rejection and discrimination. Addressing broad debates about the nature of secrecy, morality, and silence, this book explores public policy questions in the light of the nuanced, private decisions that are shaping the course of an epidemic and have broader indications for all.
How do modern women in developing countries experience sexuality and love? Drawing on a rich array of interview, ethnographic, and survey data from her native country of Kenya, Sanyu A. Mojola examines how young African women, who suffer disproportionate rates of HIV infection compared to young African men, navigate their relationships, schooling, employment, and finances in the context of economic inequality and a devastating HIV epidemic. Writing from a unique outsider-insider perspective, Mojola argues that the entanglement of love, money, and the transformation of girls into Òconsuming womenÓ lies at the heart of womenÕs coming-of-age and health crises. At once engaging and compassionate, this text is an incisive analysis of gender, sexuality, and health in Africa.
A moving collaboration by some of America's most eloquent writers who supply wry, raging, sorrowful, and buoyant accounts of artist friends and lovers struck down by AIDS. Published in association with the Estate Project for Artists with AIDS, the 23 essays stand as a powerful reminder and survey of the devastating impact of the AIDS epidemic on the arts community. The book also contains biographies of the subjects and the authors, as well as many bandw photographs. Annotation copyrighted by Book News Inc., Portland, OR
When the queen is murdered in her own palace at Tarangar, by those who believe they can govern the land to a better future, they initiate albeit unwittingly the destruction of their world. Evil workings, begun by the arcane weavings of one twisted mage, quickly spread across the land in the form of dragon fire and a mercenary army, operating from a huge fortress, built by the sweat and blood of countless slaves. Only the Sky-Water Dragons can save mankind, but they, too, have been caught up in the mage's workings, their Caller murdered, leaving his apprentice of seven months to unlock the secrets and break the spell a task for which he his woefully unprepared. A huge army, formed at Tarangar by the High Council, is intercepted by the Fire-Water Dragons only a few days march from the palace. For the survivors of this mindless slaughter life soon becomes a series of nightmares from which they cannot awake. While most hide in fear of their lives a brother and sister search for a way to bring the Sky-Water Dragons to their aid. If they fail the land will be lost and mankind become extinct.
What causes some people—in spite of incredible challenges—to be more alive and content than others? When Shane Stanford discovered he was HIV positive at the age of sixteen, he knew he had a choice: he could feel sorry for himself, or he could live as passionately and boldly as possible. Now, more than twenty years later, Stanford speaks nationwide about what it means to turn a positive diagnosis—or any difficult circumstance—into an opportunity for positive living. If you want to appreciate life to the fullest, this A Positive Life Ebook reveals nine basic yet powerful lessons for living well. What does it mean to be satisfied with never being satisfied? Why is simplicity a key to finding joy? Most importantly, what does it look like to live, laugh, and love in community as Jesus did—with dirty hands and feet and a love of adventure? Stanford reminds you that even struggles offer glimpses of grace. Choosing how to live out that grace is the key to making life matter—and to being more alive than ever before.
"An unflinchingly honest, eye-opening, heartful story that's sure to keep readers talking." --Angie Thomas, #1 New York Times bestselling author of The Hate U Give and On the Come Up "Romantic, funny, hopeful, and unflinchingly real." --Becky Albertalli, New York Times bestselling author of Simon Vs. The Homosapiens Agenda The uplifting story of an HIV-positive teen, falling in love and learning to live her truth. Simone Garcia-Hampton is starting over at a new school, and this time things will be different. She's making real friends, making a name for herself as student director of Rent, and making a play for Miles, the guy who makes her melt every time he walks into a room. The last thing she wants is for word to get out that she's HIV-positive, because last time . . . well, last time things got ugly. Keeping her viral load under control is easy, but keeping her diagnosis under wraps is not so simple. As Simone and Miles start going out for real--shy kisses escalating into much more--she feels an uneasiness that goes beyond butterflies. She knows she has to tell him that she's positive, especially if sex is a possibility, but she's terrified of how he'll react! And then she finds an anonymous note in her locker: I know you have HIV. You have until Thanksgiving to stop hanging out with Miles. Or everyone else will know too. Simone's first instinct is to protect her secret at all costs, but as she gains a deeper understanding of the prejudice and fear in her community, she begins to wonder if the only way to rise above is to face the haters head-on. . . . "Full Disclosure is such a joy to read." --Erika Sanchez, National Book Award finalist for I Am Not Your Perfect Mexican Daughter "A big-hearted love letter to inclusivity, bravery, and acceptance, Full Disclosure is a wonder of a book." --Kathleen Glasgow, New York Times bestselling author of Girl in Pieces
In the face of life-threatening news, how does our view of life change—and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women’s transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of “dying from” AIDS to “living with” it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.
In this landmark collection of personal essays, stories, brief memoirs, and polemics, a broad swath of black Americans unite to bear witness to the devastation AIDS has wrought on their community. Not in My Family marks a new willingness on the part of black Americans—whether prominent figures from the worlds of politics, entertainment, or sports, or just ordinary folks with extraordinary stories — to face the scourge that has affected them disproportionately for years. Editor Gil Robertson has enlisted a remarkable group of contributors, including performers like Patti LaBelle, Mo’Nique, and Hill Harper; bestselling authors like Randall Robinson and Omar Tyree; political leaders like Rep. Jesse Jackson Jr. and former U.S. Surgeon General Dr. Joycelyn Elders; religious leaders like Rev. Calvin Butts, and many, many more.
Funeral Diva is the Winner of the Lambda Award for Lesbian Poetry! A poetic memoir about coming-of-age in the AIDS era, and its effects on life and art. "Sneed is an acclaimed reader of her own poetry, and the book has the feeling of live performance. . . . Its strength is in its abundance, its desire for language to stir body as well as mind."—Parul Sehgal, The New York Times Book Review "She is a writer for the future, in that she defies genre."—Hilton Als "This notable achievement, traveling from youth to adulthood, is a harrowing account of how Sneed transforms violence and pain into an artist's life."—Claudia Rankine, author of Citizen: An American Lyric "There's an eerie sense of timeliness to this book, which features prose and poetry by the writer and teacher Pamela Sneed and is largely — though not entirely — about mourning Black gay men killed too soon by a deadly virus."—Tomi Obaro, Buzzfeed "OH MY GOODNESS, it was amazing. I was in tears by the end. What starts off as beautiful memoir evolves into incredibly moving poetry, painful and sweet and lovely."—Marie Cloutier, Greenlight Bookstore, Brooklyn, NY "Balancing and mixing, with rhyme and reason, love and anger, good and bad, memory and the created present, all to tell the story of a life, a memoir unrestrained, devoid of artificial forms. Honest. Free."—Anjanette Delgado, New York Journal of Books In this collection of personal essays and poetry, acclaimed poet and performer Pamela Sneed details her coming of age in New York City during the late 1980s. Funeral Diva captures the impact of AIDS on Black Queer life, and highlights the enduring bonds between the living, the dying, and the dead. Sneed’s poems not only converse with lovers past and present, but also with her literary forebears—like James Baldwin, Toni Morrison, Audre Lorde—whose aesthetic and thematic investments she renews for a contemporary American landscape. Offering critical focus on matters from police brutality to LGBTQ+ rights, Funeral Diva confronts today's most pressing issues with acerbic wit and audacity. The collection closes with Sneed's reflections on the two pandemics of her time, AIDS and COVID-19, and the disproportionate impact of each on African American communities. "Riveting, personal, open-hearted, risky and wise."—Sarah Schulman, author of Conflict Is Not Abuse " . . . a tour de force about the collision between a coalescing 1980s 'Black lesbian and gay literary and poetic movement' in New York and the onslaught of AIDS."—Donna Seaman, Booklist "Pamela Sneed's Funeral Diva is deft, defiant, and devastating."—Tommy Pico, author of Feed "Funeral Diva is urgent and necessary reading to live by. This is writing at its finest. Keep this book close to your heart and soul."—Karen Finley, author of Shock Treatment "Reminiscent of Audre Lorde’s Zami, Pamela Sneed’s memoir is, in itself, a healing balm, affirming in its truths and honesty. I cannot remember ever reading a book that illustrates the impact of the AIDS epidemic on our community more poignantly than Funeral Diva."—Nicole Dennis-Benn, author of Patsy "Pamela Sneed takes enormous risks in this book. She tells the truth with fierce concentration and an abiding sense of purpose.”—Dorothy Allison, author of Bastard Out of Carolina