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Few books on invisible illness are written by psychologists. Based on work by the Chronic Illness Research Team (CIRT) at the University of East London, this expert, accessible book encourages people actively to manage their illness using the techniques shown. • Based on 20 years of research • Helps those often 'written off' by the medical profession • Pioneering text on Mal de Debarquement Syndrome (MdDS) • Authors specialist in chronic illness
A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Millions of people are discovering they are victims of conditions such as chronic fatigue, fibromyalgia, intestinal permeability (a.k.a. leaky gut syndrome), etc.; although these are all relatively new terms to most of us, they are real and debilitating for those who suffer from them. Invisible Illnesses, 2nd Edition covers all these conditions, as well as multiple chemical sensitivities, chemically induced immune system disorders and prescription drug withdrawal syndrome among others. It introduces natural therapies and lifestyle modifications for overcoming these disorders. They emphasize diet, supplementation, non-toxic therapies, environmental modifications, and therapies that encourage the healing process-reserving drugs and surgery as a last resort. With this book, and the guidance of a naturopath or integrative medical doctor, readers can learn what is needed to achieve optimal health, naturally.
“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Personal essay meets pop-culture critique in this unflinchingly honest collection about chronic illness and misogyny in medicine, by Adelaide writer Kylie Maslen
For any woman who has experienced illness, chronic pain, or endometriosis comes an inspiring memoir advocating for recognition of women's health issues In the fall of 2010, Abby Norman's strong dancer's body dropped forty pounds and gray hairs began to sprout from her temples. She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands -- securing a job in a hospital and educating herself over lunchtime reading in the medical library -- that she found an accurate diagnosis of endometriosis. In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.
Heather Hausenblas's son was diagnosed with Crohn's disease at the age of 16. Overwhelmed and all-consumed with grief at the thought of her son suffering with a chronic "incurable" disease this began her journey into understanding this disease, healing her son, and ultimately discovering what true health means. Integrating personal experiences and struggles with hundreds of research studies, Hausenblas reveals that we have the power to regain and maintain a vibrate, healthy, and happy life.She offers hard-earned wisdom, science-backed solutions, and simple tips and recipes for health and happiness. This is her case study of an autoimmune disease, from unhealthy to healthy, and its reach into the often overlooked behavioral and environmental sides of wellness.
Dillon J. Carroll’s Invisible Wounds examines the effects of military service, particularly combat, on the psyches and emotional well-being of Civil War soldiers—Black and white, North and South. Soldiers faced harsh military discipline, arduous marches, poor rations, debilitating diseases, and the terror of battle, all of which took a severe psychological toll. While mental collapses sometimes occurred during the war, the emotional damage soldiers incurred more often became apparent in the postwar years, when it manifested itself in disturbing and self-destructive behavior. Carroll explores the dynamic between the families of mentally ill veterans and the superintendents of insane asylums, as well as between those superintendents and doctors in the nascent field of neurology, who increasingly believed the central nervous system or cultural and social factors caused mental illness. Invisible Wounds is a sweeping reevaluation of the mental damage inflicted by the nation’s most tragic conflict.