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How does caregiving affect health and well-being and what resources help caregivers? This book provides a synthesis of psychological research on caregiver stress and brings attention to the personal, social and structural factors that affect caregivers' well-being and as well as recent behavioral interventions to enhance health.
What makes a disease real? Why is it that patients with chronic fatigue syndrome or fibromyalgia are doubted when they say they are in pain, and cannot access the same benefits of patient-hood that others can? What defines the limits of our belief and, ultimately, compassion, when it comes to disease? These are the questions approached in this book, which draws upon patients’ experiences and situates them among a diverse set of literatures, from the history and philosophy of medicine to the sociology of health and disease. The question of a patient’s identity and their understanding of disease is often assumed to emerge from their relationship with healthcare, but the case is made here that other, inter-personal factors are more salient. What a patient with a contested illness comes up against is not simply a medical categorisation – it is a prevailing notion of disease across society, and one they struggle to assimilate themselves into. Contested Illness in Context will appeal to students and researchers interested in fields such as the history and philosophy of medicine, the sociology of health and illness, medical anthropology, or disease and illness generally. It may also interest patients and doctors who struggle with difficult medical cases.
"This is a comprehensive book focused on relevant factors that influence health, illness, and well-being from multi-discipline perspectives. It is a unique book to provide health leaders and consumers refreshing new ways to know and understand cultures. It is an essential book to serve cultures in creative and effective ways. The authors provide new and diverse cultural insights about health, illness, and wellness that have been woefully missing until the advent of transcultural nursing." Dr. Madeleine Leininger Professor of Nursing Emeritus, College of Nursing, Wayne State University --
From the Preface, by Arthur Kleinman: Patients and Healers in the Context of Culture presents a theoretical framework for studying the relationship between medicine, psychiatry, and culture. That framework is principally illustrated by materials gathered in field research in Taiwan and, to a lesser extent, from materials gathered in similar research in Boston. The reader will find this book contains a dialectical tension between two reciprocally related orientations: it is both a cross-cultural (largely anthropological) perspective on the essential components of clinical care and a clinical perspective on anthropological studies of medicine and psychiatry. That dialectic is embodied in my own academic training and professional life, so that this book is a personal statement. I am a psychiatrist trained in anthropology. I have worked in library, field, and clinic on problems concerning medicine and psychiatry in Chinese culture. I teach cross-cultural psychiatry and medical anthropology, but I also practice and teach consultation psychiatry and take a clinical approach to my major cross-cultural teaching and research involvements. The theoretical framework elaborated in this book has been applied to all of those areas; in turn, they are used to illustrate the theory. Both the theory and its application embody the same dialectic. The purpose of this book is to advance both poles of that dialectic: to demonstrate the critical role of social science (especially anthropology and cross-cultural studies) in clinical medicine and psychiatry and to encourage study of clinical problems by anthropologists and other investigators involved in cross-cultural research. This title is part of UC Press's Voices Revived program, which commemorates University of California Press's mission to seek out and cultivate the brightest minds and give them voice, reach, and impact. Drawing on a backlist dating to 1893, Voices Revived makes high-quality, peer-reviewed scholarship accessible once again using print-on-demand technology. This title was originally published in 1980. From the Preface, by Arthur Kleinman: Patients and Healers in the Context of Culture presents a theoretical framework for studying the relationship between medicine, psychiatry, and culture. That framework is principally illustrated by materials gathered
The Social Context of Health and Health Work breaks new ground by linking together sociology of health and social policy perspectives. Linda Jones argues that health and health work cannot be understood in isolation. Patterns of disease, illness, treatment and provision are crucially influenced by class, race, gender, age and disability. Conflicts over health policies reflect fundamental debates about the purpose of welfare. The writer draws on her specialist knowledge of developing and teaching nursing and health studies courses, and on her recent experience of writing distance learning materials, to create a book which encourages critical thinking and supports study.
Loustaunau and Sobo demonstrate the ways in which cultural and social factors shape medicine and health care. After a discussion of culture, the social structure and the impact of poverty, class, gender, and family patterns on health, illness and care-seeking, they explain the similarities and differences of medical systems cross-culturally. The authors call for a more flexible and culturally sensitive system of health care that expresses caring in more holistic ways, and offer examples as to how this might be accomplished in the increasingly multicultural USA.
What makes a disease real? Why is it that patients with chronic fatigue syndrome or fibromyalgia are doubted when they say they are in pain, and cannot access the same benefits of patient-hood that others can? What defines the limits of our belief and, ultimately, compassion, when it comes to disease? These are the questions approached in this book, which draws upon patients' experiences and situates them among a diverse set of literatures, from the history and philosophy of medicine to the sociology of health and disease. The question of a patient's identity and their understanding of disease is often assumed to emerge from their relationship with healthcare, but the case is made here that other, inter-personal factors are more salient. What a patient with a contested illness comes up against is not simply a medical categorisation - it is a prevailing notion of disease across society, and one they struggle to assimilate themselves into. Contested Illness in Context will appeal to students and researchers interested in fields such as the history and philosophy of medicine, the sociology of health and illness, medical anthropology, or disease and illness generally. It may also interest patients and doctors who struggle with difficult medical cases.
This book is a contribution to humanistic studies of illness. Medical humanities are by nature cross-disciplinary, and in recent years studies in this field have been recognized as a platform for dialogue between the “two cultures” of the natural sciences and the humanities. Illness in Context is a result of an encounter of several disciplines, including medicine, history and literature. The main stress is on the literary perspectives of the interdisciplinary collaboration. The reading practices highlighting the clinical, phenomenological and archeological approaches to illness take as their point of departure the living text, that is, the literary experience mediated and created by the text. Literature is seen not solely as a medium for the representation of experiences of illness, but also as a historical praxis involved in the forging of our common understanding of illness. In contrast to traditional literary analysis – primarily oriented toward the interpretation of the literary work’s meaning – the project will emphasize description and understanding of how literature itself performs as a means of interpretation of reality. The target group for this book comprises professionals in the various disciplines, and students of health and culture. The ambition is to contribute to teaching in humanistic illness research, and function as a topical resource book that formulates controversial problems in the crucial meeting of medicine and the humanities.
Author : Institute of Medicine Publisher : National Academies Press Page : 127 pages File Size : 37,89 MB Release : 1999-10-19 Category : Medical ISBN : 0309172608
In response to a request by the Health Care Financing Administration (HCFA), the Institute of Medicine proposed a study to examine definitions of serious or complex medical conditions and related issues. A seven-member committee was appointed to address these issues. Throughout the course of this study, the committee has been aware of the fact that the topic addressed by this report concerns one of the most critical issues confronting HCFA, health care plans and providers, and patients today. The Medicare+Choice regulations focus on the most vulnerable populations in need of medical care and other services-those with serious or complex medical conditions. Caring for these highly vulnerable populations poses a number of challenges. The committee believes, however, that the current state of clinical and research literature does not adequately address all of the challenges and issues relevant to the identification and care of these patients.
Author : Institute of Medicine Publisher : National Academies Press Page : 251 pages File Size : 13,63 MB Release : 2015-03-16 Category : Medical ISBN : 0309316928
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.