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Author : Sara Gorman
Publisher : Sara Gorman
Page : 106 pages
File Size : 22,28 MB
Release : 2009
Category : Health & Fitness
ISBN : 1439234892
Looking for a better way to manage life with a chronic illness? Despite Lupus will guide you through the proven steps needed to obtain the emotional and physical wellness you deserve.
Author : Marisa L. Zeppieri-Caruana
Publisher : Thoughts & Letters Incorporated
Page : 242 pages
File Size : 16,88 MB
Release : 2013-04-30
Category :
ISBN : 9780615808772
Life was progressing as expected; getting sick was never part of their plan. However, in its own distinct and sudden way, Lupus showed up in the lives of the men and women profiled in this book. Although their ages, locations and stories are different, they all share one thing in common: they refuse to give up hope, despite Lupus. Lupus: Real Life, Real Patients, Real Talk is the first book of its kind in relation to the disease. Journalist, Lupus patient and Lupus Foundation of America Board Member, Marisa Zeppieri-Caruana, sets out to find men and women across the nation who will share the hurdles of daily life when battling a debilitating and cruel disease. What she discovers is a community not broken and hopeless, but one that is optimistic and refuses to give in. These patients have encountered many obstacles - kidney transplants, open-heart surgeries, coma, and dialysis - yet they continue to persevere. They share their darkest moments and their future dreams. In addition to telling their stories, they discuss tips on how to manage and deal with the disease - emotionally, spiritually and physically. This book provides tangible information and inspiration for every Lupus patient and their loved ones. It is also an essential tool for those who are newly diagnosed and trying to navigate the choppy waters of chronic illness and daily life. Featuring Amy Kelly-Yalden, CEO of the Lupus Foundation of America, Southeast Chapter, and Magdalena Cadet, MD, FACR, Director of Rheumatology at New York Presbyterian Healthcare System, this book is not to be missed.
Author : Robert H. Phillips
Publisher :
Page : 50 pages
File Size : 41,29 MB
Release : 1996
Category : Systemic lupus erythematosus
ISBN : 9781888614039
Author : Karen Drennan-McEwan
Publisher : Balboa Press
Page : 227 pages
File Size : 19,61 MB
Release : 2019-02-15
Category : Health & Fitness
ISBN : 1982220503
It’s estimated that 1.5 million Americans, nearly five million people worldwide, have some form of lupus. Current data suggest it’s more common than cystic fibrosis, leukemia, muscular dystrophy, and multiple sclerosis combined. At present, the disease is unfamiliar to most and is widely misunderstood. This leads to high levels of misdiagnosis, belated diagnosis, or misdiagnosis that is potentially life-threatening. It could be a leading “sleeper” disease of modern times, with people suffering unacknowledged and untreated. In How to Stay Sane in Pain, author Karen Drennan-McEwan clarifies the key symptoms of the disease, which include chronic pain, and explains how it is currently diagnosed and treated. She offers a look at its history, medications, and their main side effects. From the author’s perspective of someone who suffers personally from lupus, as well as other patients’ testimonies, this guide describes how to achieve resilience and calm despite the disease. Drennan-McEwan offers a step-by-step mind-body approach, an approach rooted in the author’s experience of a massive lupus flare and utilizing her training as a counselor and psychotherapist.
Author : Marisa Zeppieri
Publisher : Broadleaf Books
Page : 209 pages
File Size : 23,69 MB
Release : 2021-05-04
Category : Health & Fitness
ISBN : 1506464114
When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.
Author :
Publisher : Penguin
Page : 260 pages
File Size : 13,96 MB
Release : 1999
Category : Health & Fitness
ISBN : 9780895298812
Much-needed information and inspiration for the millions who suffer from thisdebilitating disease.
Author : Melissa Anne Goldstein
Publisher : Ohio State University Press
Page : 298 pages
File Size : 19,27 MB
Release : 2000
Category : Biography & Autobiography
ISBN : 9780814208403
The Lupus Foundation of America estimates that between .5 and 1.5 million people have been diagnosed with lupus, a chronic autoimmune disease that can attack any part of the body. The elusive nature of the illness often becomes a source of overwhelming helplessness and frustration to its victims, their loved ones, and the physicians who treat it. Narrated through both poetry and prose, Travels with the Wolf is an autobiographical account of Melissa Anne Goldstein's experiences with lupus. It is her story of becoming a young woman, writer, and teacher in the presence of severe, often debilitating disease. It is an exploration of her relationships with her family and friends as the illness steals into their lives, and the record of her struggle to maintain her independence and identity despite disease. Finally, it is an author's journey to find her spiritual core. This book is not just about lupus. Goldstein uses her experience of the illness as well as sociological, literary, and historical research, to portray and understand the dilemmas faced by the chronically ill person in our society. In her conclusion, she calls for reform of today's health care system, which does not meet the needs of the chronically ill or their physicians.
Author : Robert H. Phillips
Publisher : Penguin
Page : 414 pages
File Size : 47,83 MB
Release : 2001
Category : Family & Relationships
ISBN : 9781583330951
A diagnosis of lupus is understandably disquieting and can cause emotional turmoil. After all, there is no cure for the disease, and managing its debilitating symptoms can be challenging. This completely revised and updated edition of Coping with Lupusanswers all the important questions you may have about this disease of the autoimmune system. Writing in a warm, engaging style, Dr. Robert Phillips offers useful information and practical coping strategies to help you through a stressful time. He lends his expertise in dealing with the psychological aspects of chronic health problems, and provides the most recent medical information about lupus.
Author : Peter H. Schur
Publisher : Springer Science & Business Media
Page : 266 pages
File Size : 50,93 MB
Release : 2012-07-06
Category : Medical
ISBN : 1461411890
Often considered the prototypic autoimmune disease, Lupus is characterized by protean manifestations and affects a wide range of organ systems. Despite widespread availability of anti nuclear antibody testing and other technological diagnostic advances, the diagnosis of lupus can be elusive, difficult, and inexact. Treatment of the disease can also be challenging. Advances in immunology and biotechnology have led to a burgeoning world of new therapies in development that offer patients the real possibility of new therapies and physicians and scientists novel insights into the pathogenesis of this complicated immunological disease. Lupus Erythematosus: Clinical Evaluation and Treatment summarizes the clinical aspects of lupus facing the general clinician in the 21st century. In this invaluable, practical book, the reader will find introductory chapters regarding general diagnostic and treatment principles, followed by chapters addressing the lupus-specific organ manifestations. Special topics regarding pregnancy and comorbidities are also presented. Written by highly experienced physicians with special expertise in lupus, Lupus Erythematosus: Clinical Evaluation and Treatment is an indispensable reference for the common and not so common problems affecting patients with lupus.
Author : Niranjana Parthasarathi
Publisher :
Page : 0 pages
File Size : 17,71 MB
Release : 2023-01-23
Category : Family & Relationships
ISBN :
In Lupus: In the Jaws of the Wolf, Niranjana Parthasarathi, M.D., named one of the "Best Doctors in America" and former professor of internal medicine, recounts her thirty-seven-year history with this debilitating disease. Her symptoms began at age 23 while a medical student, and though she was able to pursue her passion for her career, a severe flare at age 50 disabled her, followed by an extended period of multi-organ complications of both disease and treatment. In this book the many complexities and frustrations that lupus brings to a person's life are explored, including physical limitations and effects on relationships as well as one's identity. Dr. Parthasarathi candidly shares her mistakes, pitfalls, and lessons learned along her challenging, continuing journey offering hope, insight, and recommendations to help alleviate suffering: - Practical, day-to-day disease management advice along with research, expert opinion, and recommendations from Dr. Parthasarathi's personal experience - Strategies for handling difficult emotions and staying positive - Inequities in the healthcare system and how they impact the chronically ill - Resources for lupus patients and their families As a physician with lupus, Dr. Parthasarathi brings expertise, and a unique perspective that has enabled her to thrive despite the ravages of the disease. She hopes her account will aid other chronically ill patients and ease their paths forward. Note: All proceeds from the sale of this book will go to Lupus Research Alliance and the Lupus Foundation of America.